Longtime readers know that my older brother is autistic. I’ve written about my experiences as a co-guardian…my encounters with the system…and my general stress over balancing my guardianship role with my wish to just be his sister. I’ve also written about those sister-brother moments that make all the drama I experience as a guardian worth it.
Well, I made dinner for my brother’s house Saturday. He has two roomies and they all have staff on site 24 hours a day. I brought over peppercorn pork loin, cheesy potatoes, and a salad…all of which was demolished, much to my pleasure.
I returned home to news about a certain Rick Santorum and his remarks about how Obama “looks down on the disabled” by supporting prenatal testing…because on Santorum’s planet prenatal testing is a tool designed by heathens to do away with all detectable disabilities. In the real world…prenatal testing allows expecting parents to know the detectable health status of their pregnancy.
That wretched ‘liberals don’t care about the disabled’ bullshit is just the latest in a long list of Santorumisms that Rick likes to spout and thinks he’s particularly empowered to spout because he has a daughter with special needs.
I’ve got news for the Santorums of the world – your policies barely meet the basic needs of my brother with special needs.
Y’all can use this issue as a campaign tool when you bring your political GPA above failing.
Well, my brother shouldn’t be told by his state that making $100 a month at a job disqualifies him for Medicare coverage…because conservatives under the dome passed a “reform” to punish poor people without giving a shit that many disabled people are poor.
My brother shouldn’t face a monthly food allowance of $160 per month…because conservatives under the dome think hunger is a motivator and fail to grasp the reality that special needs children will become special needs adults who still have…wait for it… “needs” like food.
And let me keep it real – we are the lucky ones to only have that shit to fret about.
I’ve had it with politicians using people with special needs to score political points with a base that can’t be bothered to employ, volunteer with, or look a person with special needs in the eye.
Oh, they talk the talk.
But they all too often fail to walk the walk.
The realness - Rick Santorum and all those caring conservatives support legislation by Senator Blunt that would allow any employer in the state of Missouri to deny coverage by claiming a moral objection.
That could and often would include autism treatments and therapies…just think of all of those kids with special needs that will be denied coverage simply because their parent’s employer claimed a moral objection.
And while you hesitate…Missouri already has incidents of “church plans” denying coverage for autism treatment even though the church in question has no apparent religious objection to autism or people with autism or the parents of people with autism.
Spare me the campaign rhetoric about who "cares" about people with special needs.
I’m from Missouri - you’ve got to show me.