tag:blogger.com,1999:blog-10755833.post8713754590818603879..comments2024-01-17T15:05:50.120-06:00Comments on AngryBlackBitch: Since she brought the subject up…Shark-Fuhttp://www.blogger.com/profile/03323962708956637012noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-10755833.post-26099547255538927892007-11-29T20:30:00.000-06:002007-11-29T20:30:00.000-06:00I'm here from Feministe, thank you for your excell...I'm here from Feministe, thank you for your excellent post. <BR/><BR/>I live in Canada and am a caregiver to a nine year old with autism. Although we have universal health care and my province has terrific funding, this will probably be his last year of funding. <BR/><BR/>He's such a great kid. He's so funny and he has a great imagination and he's so smart. He's very high funcitoning and works so hard everyday, but he still needs help with so many things. I really worry about how he'll do next year.<BR/><BR/>And let me say YES to sly civillan's comment. We can hope for a cure, but we need to realize that these kids-and adults-and their families are living this now. I think therapy needs to focus more on enabling people to live as they are, rather than 'curing' them. The boy I work with is an amazing individual. There's nothing 'wrong' with him, he just processes things differently and needs some help getting to know people. Once he knows someone and they know him, he's a delight. <BR/><BR/>(Sorry for the long comment, I've been thinking about this recently...)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10755833.post-40034850332601812612007-11-27T09:46:00.000-06:002007-11-27T09:46:00.000-06:00*nods*And how about funding that doesn't just dayd...*nods*<BR/><BR/>And how about funding that doesn't just daydream about cures, but finding ways to help people as they are, in the lives they lead.benhttps://www.blogger.com/profile/03082138040950123534noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-84351823530499999342007-11-26T21:09:00.000-06:002007-11-26T21:09:00.000-06:00If we had universal healthcare, would that take th...If we had universal healthcare, would that take this issue off the table? <BR/><BR/>What bothers me most is that you have to point out that Autistics grow-up..its like no one thinks of that fact.Anonymoushttps://www.blogger.com/profile/06698117410778232102noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-42076311953791868592007-11-26T17:53:00.000-06:002007-11-26T17:53:00.000-06:00My 15-year-old is "high-functioning", but still I ...My 15-year-old is "high-functioning", but still I won't let him cross the street by himself. His older brother is <I>thisclose</I> to being Aspie. My youngest, the girl, is in for a rough ride when I'm old, I fear...<BR/> <BR/>There's Alzheimers in both my family and my husband's.<BR/> <BR/>I'm scared as hell of the future.Camera Obscurahttps://www.blogger.com/profile/07366304095952901048noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-63822290181287505982007-11-26T15:50:00.000-06:002007-11-26T15:50:00.000-06:00*Great* post, Shark-fu. This -- "people like my o...*Great* post, Shark-fu. This -- "people like my older autistic as hell but loves to work brother" -- describes my cousin perfectly. (He not only loves to work, but loves to complain about how much he hates working, just because that's what everyone else does, ha.) His boss loves him, his co-workers love him, and he's good at his job. But it's only possible because his mother is still alive and makes sure the rest of his life is carefully arranged and all the necessary accommodations made so that he can function as best at possible to make working possible.<BR/><BR/>Without her, he would be lost. And/or in need of living arrangements that duplicate her efforts. He's lucky to have two siblings and several cousins, all of whom are willing to provide that for him -- a depth of options. Not everyone in his situation is so fortunate, which is, as you say, why funding for adults (including adult residential centers) is so important.Melissa McEwanhttps://www.blogger.com/profile/04784594504716679607noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-486184904321353602007-11-26T12:12:00.000-06:002007-11-26T12:12:00.000-06:00So often there is funding and concern for children...So often there is funding and concern for children and everyone forgets that they grow up, whatever the condition. And the needs of adults are different than the needs of children.Maya's Grannyhttps://www.blogger.com/profile/12183715043200608144noreply@blogger.com