tag:blogger.com,1999:blog-10755833.post2021825476555108796..comments2024-01-17T15:05:50.120-06:00Comments on AngryBlackBitch: Awareness...Shark-Fuhttp://www.blogger.com/profile/03323962708956637012noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-10755833.post-84949273770957972502008-05-26T10:12:00.000-05:002008-05-26T10:12:00.000-05:00my brother is autistic and your story reminds me o...my brother is autistic and your story reminds me of when he runs around the house naked. -IzShannon Des Roches Rosahttps://www.blogger.com/profile/18057806553670980068noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-60470001251674240372008-04-05T10:41:00.000-05:002008-04-05T10:41:00.000-05:00Hi, Shark-Fu. I have put up a diary of possible i...Hi, Shark-Fu. I have put up a diary of possible interest about autistic bloggers and their concerns over at <A HREF="http://myleftwing.com/showDiary.do?diaryId=21475" REL="nofollow">My Left Wing</A>. I also put it on a minor orange blog whose name I forget. Got two autistic boys of my own.<BR/><BR/>All the best, Bruce/CrablawUnknownhttps://www.blogger.com/profile/10061310869172140025noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-79836962070504283352008-04-04T23:13:00.000-05:002008-04-04T23:13:00.000-05:00Shark-fu, what a lovely post. I adore all your st...Shark-fu, what a lovely post. I adore all your stories of brother Bill, and I think you could write an outstanding book about your experiences. Your wish for every family touched by autism is just beautiful.<BR/><BR/>Love to brother Bill and all of your family.Laura in L.A.https://www.blogger.com/profile/09799362516871105837noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-26150875586900271502008-04-04T12:59:00.000-05:002008-04-04T12:59:00.000-05:00Thank you for this post, and for your beautiful w...Thank you for this post, and for your beautiful words. My son was diagnosed at age 3. We are lucky because we found help and he is now partially recovered. I know that not all treatments work for all people with autism, but want to leave some words of encouragement for those who may feel limited in their resources due to money or location. There have been many changes just in the last two years in terms of research and treatment. I encourage anyone who wants more information or even just moral support to try www.generationrescue.org, www.autism.com, www.tacanow.org, or the many yahoo groups on autism. And if you know any autism caretakers, give them a hug next time you see them. I guarantee they could use it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10755833.post-44613916867841729962008-04-04T11:14:00.000-05:002008-04-04T11:14:00.000-05:00My nephew is autistic (not severe) and my brother ...<B><BR/><BR/> My nephew is autistic (not severe) and my brother and his family do much to pretend it isn't all happening. They do not seek help from professionals and that has always riled me. Reading your text made that gut feeling of frustration vanish. For, in the end, they have found love in a different kind of normal and that might just be enough for their son.<BR/></B><BR/><BR/>Lilalia:<BR/><BR/>Just to give you perspective resources and professionals that deal with autism are slim and the sad thing is autism is a spectrum disorder. Some people have experience with a certain spectrum, but not another, and to be honest most doctors don't know ish about what to do with autism. My brother growing up would go to specialist and half the time we would know more about his diagnosis than them. It is such a mystery on how it works. Your brother could be frustrated because your nephew like tons of others get piss poor treatment and therapies that don't work. Autism has no cure and really can't be fixed.Anonymoushttps://www.blogger.com/profile/09887279569489057828noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-50624127992351143212008-04-04T02:01:00.000-05:002008-04-04T02:01:00.000-05:00Thanks so much for that, Shark-fu -- the image of ...Thanks so much for that, Shark-fu -- the image of your mama in her bra and slip brought back memories of hot midwestern days when my mama would shed her usual librarian decorum. Don't think she would have dealt as well with naked son in the yard, though. lol<BR/><BR/>Mold -- thanks for the note about rural communities and autism. I live in a tiny town, and my friend struggled mightily when her 15-year-old son outgrew her suddenly and became increasingly violent. It got to the point where none of the local day-time care-givers would work with him, and she had to pretty much quit her day-job, even with family and friends to fill in.<BR/><BR/>When she needed respite, the only choice was a group-home 50 miles away, which was heart-breaking for both of them -- plus, she had to kick and scream for a placement when she needed it.<BR/><BR/>Her son is one of my favorite people on the planet -- the first time we met, he honored me by stripping naked within the first 15 minutes (all six foot two of him), and bouncing around the house with great enthusiasm.PortlyDykehttps://www.blogger.com/profile/08598941981828041835noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-61175886116622604202008-04-03T23:30:00.000-05:002008-04-03T23:30:00.000-05:00Thank you for writing this. I will make sure my da...Thank you for writing this. I will make sure my daughter Iz reads it. It will reassure her to know that there are other families with double standards like those that I wish didn't apply to her and her brother, and which piss her off mightily, as described above.Shannon Des Roches Rosahttps://www.blogger.com/profile/18057806553670980068noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-34087562751203859752008-04-03T16:07:00.000-05:002008-04-03T16:07:00.000-05:00"May everyone with autism in their world find the ..."May everyone with autism in their world find the laughter within the frustration, the joy within the pain and the strength to love a different kind of normal."<BR/><BR/>That is so beautiful. Thank you for providing a motto to help get me and my family through our son's bad days and something to remember on the good. I love your blog and I think you are a wonderful person. We need more of you in this world.Deliasgonehttps://www.blogger.com/profile/16425800845280319455noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-27236620755441262008-04-03T13:46:00.000-05:002008-04-03T13:46:00.000-05:00Shark-Fu, you really should be writing a book abou...Shark-Fu, you really should be writing a book about this. Your entry about your mom's experiences and your childhood memories with your brother's autism was hilarious.<BR/><BR/>You can write about policy, statistics, dollars and cents until your keyboard screams 'enough!', but what people are most likely to read and remember are stories that hit their hearts and/or makes them laugh.<BR/><BR/>Yeah, I know the situation was and is tragic, but your humor makes it bearable and wanting me-the-reader to read more... and even see a movie of about it. (Hint, hint, wink, wink.)<BR/><BR/>Maybe a book will solve those $$$ problems you mentioned in a later post about taxes, death and trouble, and even bring publicity about autism. Your story and style - which begins from a kid's point of view - also makes it more likely that the book will be put on the list for middle or high schoolers for summer reading. <BR/><BR/>Good luck, and I want an autographed copy if you do it!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10755833.post-91490188707420206262008-04-03T12:25:00.000-05:002008-04-03T12:25:00.000-05:00This is a great post. My grandmother, the woman wh...This is a great post. My grandmother, the woman who was responsible for the majority of my upbringing, also raised my younger cousin who was born with autism. I can relate very well to the emotional ups and downs that autism can have on an entire family structure. Thank you for demonstrating how the power of family and love are so much greater then the trials and tribulations.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10755833.post-29770797010645413062008-04-03T11:29:00.000-05:002008-04-03T11:29:00.000-05:00Mold...Great point! Eevn in St. Louis city autism...Mold...<BR/><BR/>Great point! Eevn in St. Louis city autism care is still under funded.<BR/><BR/>Since autism is now in the news, we must always keep in mind that rural communities lack funding and access to treatment facilities...and that funding in general has not been adjusted to fit the new spectrum of autism.<BR/><BR/>Thanks for that reminder!Shark-Fuhttps://www.blogger.com/profile/03323962708956637012noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-10902774161491307952008-04-03T11:16:00.000-05:002008-04-03T11:16:00.000-05:00Autism ranges a great deal and not everyone has th...Autism ranges a great deal and not everyone has the resources to assist a kid if they can function. In this rural and poor community, many autistic children recieve help but the majority of the funds are earmarked for the most severe.<BR/><BR/>MoldAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-10755833.post-77715465385819138502008-04-03T10:01:00.000-05:002008-04-03T10:01:00.000-05:00I love the way you write about your brother. Makes...I love the way you write about your brother. Makes me tear up every time, but in a joyful way.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10755833.post-9866109989432975022008-04-03T09:42:00.000-05:002008-04-03T09:42:00.000-05:00You post reminds me of when I used to work with Au...You post reminds me of when I used to work with Autistic kids in HS. It was a great experience. I didn't find out they were autistic until 2 years into the job.Mohttps://www.blogger.com/profile/10302233036493770234noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-43752688084599929052008-04-03T08:32:00.000-05:002008-04-03T08:32:00.000-05:00My nephew is autistic (not severe) and my brother ...My nephew is autistic (not severe) and my brother and his family do much to pretend it isn't all happening. They do not seek help from professionals and that has always riled me. Reading your text made that gut feeling of frustration vanish. For, in the end, they have found love in a different kind of normal and that might just be enough for their son.lilaliahttps://www.blogger.com/profile/17834341657842966966noreply@blogger.comtag:blogger.com,1999:blog-10755833.post-37081311346758044962008-04-02T21:54:00.000-05:002008-04-02T21:54:00.000-05:00I love you for this post, and blessings on all of ...I love you for this post, and blessings on all of the bitch family heads.Yankee, Transferredhttps://www.blogger.com/profile/06627693160131161133noreply@blogger.com